What is Congenital Adrenal Hyperplasia (CAH)?
CAH is a genetic defect of the adrenal glands. A person with CAH will not be
able to produce several vital hormones known as corticosteriods. CAH is treated
with hormone replacement, replacing one or both of the hormones missing,
generally with Cortef and Florinef. Living with CAH requires extra attention to
common illnesses and stress inducing situations (injury, exercise, etc.) and
very good communication with your Endocrinologist. While this site is intended
to provide information, support and education for people and families with CAH,
your Endocrinologist must always be your primary source for medical information,
and should always be consulted regarding any medical questions.
Congenital Adrenal Hyperplasia Medical Sites
In the Medical Sites section you will find links to web sites and pages with
information on the medical aspects of CAH, including technical information,
medicine, screening, DNA testing, etc. Many of the links are to sites and pages
for medical professional so may be hard to understand. Please refer to the CAH
Glossary for definitions of some of the more common terms.
Congenital Adrenal Hyperplasia People and Support Groups
Communicating with other people or families with CAH is an essential part of
living with Congenital Adrenal Hyperplasia. Through the People and Support
Groups page you will find links to others who are also dealing with the
condition, either themselves or a loved one. The Message Boards on this site are
also an indispensable tool in networking with others around the globe who have
been where you are, or will be.
Our Message Boards are the heart of our efforts to facilitate the Education and
Support of people and families with CAH. We utilize a completely customized
message board script, written specifically for the unique requirement of this
site, to offer the easiest communication between those across the globe who are
interested in sharing or learning about Congenital Adrenal Hyperplasia.
Frequently Asked Questions about Congenital Adrenal Hyperplasia
Our Frequently Asked Questions were gathered from the 40,000+ messages in the
Main Message Board Archives. The questions are divided into sections, based on
who best could answer that question. Some sections provide links to threads
within the archives that contain messages that answer the question, some have
answers we have researched and gathered the data for. Two sections will answers
provided by noted Endocrinologists who have graciously agreed to supply answers.
Currently the FAQ section has not been completed. We will be adding answers as
time goes one, please check back for updates.
Congenital Adrenal Hyperplasia Glossary
Eventually you'll find yourself wading through terms you will not understand.
The CAH Glossary is provided as a quick way for you to familiarize yourself with
the medical terminology pertaining to Congenital Adrenal Hyperplasia.