Last day!: By hook or by crook..... (nt)
3  •  April 15, 2013, 1:35am
Rís Mom: Archives.... Old times!!!!
Last night I was just going through the archives and saw my own message regarding my swcah daughter then 18 mths old. I was so worried and scared because we were then living in a very remote village in my very under developed country. Today my daughter is 8 1/2 yrs old and we r well settled in USA, so glad we made a right choice of moving here...
[more]
April 13, 2013, 10:15am
Rís Mom: Funny and sad ...
My 8 1/2,yo daughter is going into early puberty and her endo will decide if she should put her on lupron next month or so. This morning I thought may be I should mentally prepare her for the lupron so I asked her a couple of questions . Our conversation was like this...
[more]
3  •  April 11, 2013, 10:58am
Karen: Dr..Oz
Yesterday on Dr.Oz the show was about generic vs name brand. I got thinking that my kids take generic cortef and florinef. On the show the guy said you could ask the pharmacist to fill it from the manufacturer like pfizer and they could still be generic...
[more]
April 10, 2013, 1:31am
Megan: Oh dear...it’s what I feared the most!
I’ve just joined the ’new era’ CAH site and it’s exactly what I hoped it wouldn’t be! That horrible, horrible, horrible and one more horrible Facebook like format, with its revolt-causing ’ like’ and ’dislike’ buttons etc etc...
[more]
10  •  April 10, 2013, 11:16am
Rís Mom: Advanced bone age....worried
My 8 yr 6mths old daughter’s bone age cme out to be is 10-11 yrs . Is it too bad ? How will it affect her , right now I’m on hold on ph trying to reach her endo. Just too impatient to wait for my answers. Any input???
3  •  April 10, 2013, 9:37am
Lou: Website!Living With CAH.com
I just signed up to this website which seems good. What I like is you get the opportunity once or so a month to message a Dr about CAH which I thought was a good idea.
1  •  April 9, 2013, 4:55am
Site Admin: On April 15th this board will migrate...
After that to view the archives you can use http://congenitaladrenalhyperplasia.net/index.html, which was going to be the new format, but still displays all messages. I’ll eventually add a search there to find older posts. To go to the new social network community go to http://congenitaladrenalhyperplasia...
[more]
10  •  April 8, 2013, 6:49am
cc: cortef and puberty
I know cortef can affect height growth, but does it also slow down puberty and thin hair? My 13 year old daughter does not seem to have any significant development in over a year. Since her bone age is congruent, I am beginning to worry. Her sister was a late bloomer, but her bone age was delayed by 3 years...
[more]
1  •  April 5, 2013, 11:21am
anon: Gay or not?
I am a mom to a swcah girl. After reading the thread below I am wondering if it is inevitable that my daughter will be a lesbian. For those of you who have a swcah grown child or have swcah would you mind telling me if you are a lesbian or not?
49  •  April 4, 2013, 7:31am
Katrina: Aimee, Joanne, and other SWCAH Women
Ladies, It has been a very long time since I have been on this message board. Aimee, I don’t know if you remember my name, but we had many conversations when we were at odds in terms of our opinions. For that, I am sorry. I realize now, you are really the expert on this journey...
[more]
12  •  April 4, 2013, 1:02am
Meagan: Questions
I have Salt Waisting CAH. I have been having alot of problems lately. Just wondering if any of you guys have trouble missing work? My company is really well about working with me. Just really wondering if the disibiltity is avaiable for us? Just a question guys, not lazy...
[more]
2  •  April 4, 2013, 10:37am
aimee: @danny Off topic
Hi Danny, Thankyou for not bringing up Michelle Bachman  : ) lol Sarah Palin is just fine but to win in this country at this time period? .....no. (I understood what you meant in the other post but she doesn’t have CAH) Do you like Chris Cristi?    all the best to you and family!  
18  •  April 2, 2013, 12:38pm
KJ: Question about Puberty
We just realized that our 10 1/2 yr old SWCAH son is starting to grow some hair in his genital area. Should we be concerned? His last bone age (in December) said he was 6-12 months advanced....which seemed fine. We’re scheduled to meet w/ his endocrinologist next week...
[more]
2  •  April 2, 2013, 11:21am
a: She feels like a boy
a few days ago the conversation went like this... "Mama, am I a boy?" "why do you ask that?" "I don’t know...because I like boy stuff, like toys and I’m rough" "Do you feel like a boy?" "uhm, no, I don’t know" "Do you feel like a girl?" "uhm, well I look like a girl but I’m not like (sister), she likes princess stuff...
[more]
18  •  March 29, 2013, 7:57am
lucy: Dex and keratosis pilaris
Anyone taking dexamethasone has experienced keratosis pilaris or chicken skin. I have it on my upper arms and upper thighs and I noticed it after starting dex. Please let me know if anyone else has it. It looks like goosebumps but is actually baby hair sprouting...
[more]
3  •  March 28, 2013, 12:28pm
Jason: Leukemia
Have any of you guys with young CAH salt wasters been diagnosed with leukemia? Our pedi is doing blood work on my little one. I was just wonder how common leukemia is with CAH patients and if there appears to be a specific type that is affecting them?
2  •  March 28, 2013, 10:20am
Kelly Leight: AIU has a survey for family member of those affected by CAH
Jennifer Knapp from Adrenal Insufficiency United asked me to post this survey: This is for people who DO NOT have CAH (AI--adrenal insufficiency) and we need lots more people to take it to validate our other survey which is clearly showing that people with AI do suffer some serious side effects...
[more]
1  •  March 28, 2013, 12:53pm
Claire: Depression and weight
I am 40 yr old female with SWCAH. I am currently suffering quite severe depression and also feel I am overweight. I am on the lowest dose of hydrocortisone that I can manage and fludrocortisone. I have had to leave my career as a teacher recently due to the depression...
[more]
2  •  March 27, 2013, 6:12am