Kasia: who will help me ?
I am a girl with SWCAH , but I live in Poland.I don’t have CORTEF ? Who will send me? Tis is e-mail my mum beata696@wp.pl
January 3, 2013, 12:37pm
Alexandra: 13 year old with serious form of SWCAH
Hi, I’m 13 with SWCAH and have met nobody with CAH. Please email me at taz14soccer@yahoo.com. Don’t care how old you are. Mkay bye:)
December 2, 2012, 9:20am
Ruth: Correlation between CAH and ADHD
I AM NOT SURE WHY I AM SHARING THIS HERE. PERHAPS I JUST NEED TO VENT. I AM OVER 38 WEEKS PREGNANT. I DID AN ALTRASOUND TODAY WHICH SHOWED AMBIGUOUS GENITALIA. I DIDN’T ASK THE TECHNICIAN TO CHECK THE GENITALIA AND SHE DIDN’T EVEN KNOW MY FAMILY HISTORY...
[more]
November 13, 2012, 5:13am
Liz: CAH
Hello I’m a mother of an 8yr old boy with salt wasting cah. All this years I’ve been looking over him I don’t know was it because I almost lost him when he was only 2 weeks old. I haven’t talked to any mom or I don’t know any mom in my city with this condition...
[more]
October 15, 2012, 7:28am
Suzie: SSI and CAH
My neighbor suggested that I should apply for social security income because my husband and I have a low income, and our 5 month old son has CAH.  We applied, but were denied because the he isn’t limited physically by the disease.  Does anyone else receive SSI from this disease?
September 29, 2012, 8:58am
Adrienne: Has anyone experienced this?
The other day I woke up with a pretty bad headache (7 on a scale of 1-10), I get migraines already but this was not one of them.  For a few days before this I had experienced body aches, dizziness upon standing, decreased appetite, nausea when I do eat something, general weakness, a sore throat, chills, and fatigue like I have never felt before...
[more]
1  •  September 13, 2012, 5:23am
Olivia: Anyone with CAH
Anyone with CAH who wants to talk or anything like that, I’m more than happy to talk to you and help out. My email is oliviarips@aol.com.
August 18, 2012, 12:56pm
Sarah: 15 nearly 16 year old looking for other teenagers to talk about the condition with (nt)
4  •  July 22, 2012, 2:56am
alexandra: im 12 and looking for someone to talk to
if you would like to talk, please email me at taz14soccer@yahoo.com
2  •  July 15, 2012, 5:28am
CJ: no appitite
Hi my 22 month old grand daughter have CHA she has instances where she won’t have an appite. when this happens her salt and potasium in going crazy. it seems telling the doctors about these systems they don’t really acknowledge it. did anyone have this issue with eating?
1  •  July 13, 2012, 8:28am
cj: CAH (nt)
July 13, 2012, 8:25am
Lewis: CAN I BE CURED?
hi im lewis, im 13 and i’ve always been wondering, can i be cured? It’s been flowing through my head a lot and i just want a straight, honest answer. I really want to know that it’s not only me thinking this. Please message me, or e-mail me on: lewisinprague@hotmail...
[more]
5  •  June 19, 2012, 12:13pm
Trever: Lonely
I’m trever I have only really talked to one person who has the same kind of cah as me so I’m lookin for people to chat with.I’m 16 if u wanna talk post ur email in a response to this thank you
1  •  March 4, 2012, 1:50am
charlie: 14 year old girl with non classical CAH
Looking for other girls and boys around my age to talk to. i live in Perth Western Australia and have never heard of anyone else with it. would love to talk to you guys and hear all your stories! if you would like to email me heres my address charlie...
[more]
February 3, 2012, 3:47am
Trever: Someone to talk to..
Looking for someone to talk to with CAH between 14 and 17.im 16 and dont really know anyone with it. email me at treverstory@ymail.com if u wanna talk.im game for anything.and i know alot about CAH
January 28, 2012, 9:42am
Rebecca: Teens with Adrenal Insufficiency who are looking to connect with other teens with AI
Please contact me if you would like to join the group. We’re hoping to get teen boys and girls to join. It’s a closed/private group where you can talk about your personal experiences and connect with other teens who are going through the same things as you...
[more]
January 24, 2012, 7:42am
Ryan: new here
Hey, what’s up? My name is Ryan, and i’m 16 years old. Been dealin with CAH, salt wasting type, my whole life, and know a decent amount about it. I’m currently in early studies for endocrinology, and plan on majoring when I go to college...
[more]
9  •  January 20, 2012, 10:36am