Danny Carlton (site admin): Board migration...
Within the next month or so we will be migrating the message boards over to the new social network platform at http://congenitaladrenalhyperplasia.raredisease.org/. If you go there (and register or log in) you’ll see that we already have an "Controversies" Sub-Community, that will serve as the replacement for this board...
February 23, 2013, 10:57am
ebi: Swich from Hydrocortisone to Prednisole
Do you know the address? order seroquel online no prescription Level 3 A contraindication that is only described in the manufacturer’s prescribing information with no
3  •  November 10, 2012, 5:02am
CalMom: Teenage Daughter with Non-Classical AH
My 16-year-old daughter just got diagnosed with NCAH. Her 8 a.m. 17-Hydroxy Progestertone test was 299 (top of the range is 283),and her Free Testosterone was 6.0 (top of the range is 3.9). She has been having irregular periods for a little over a year...
7  •  May 10, 2012, 10:16am
Clare: To: not welcome there
If you want a friend, I will be yours.
April 10, 2012, 3:33am
Angst: Female to Male Transition with SWCAH
I would like to know how this transition would work for someone that has SWCAH. I know how it works for people without SWCAH. I’ve been told we would stop our Dex/Hydro/Pred. How could we do this without getting very sick?
4  •  December 12, 2011, 8:37am
Ronnie: INTERSEX CHICAGO - New Group at Center on Halsted
INTERSEX CHICAGO is a new peer-led social group.  See video here:  http://www.youtube.com/watch?v=xdsS5f5eObU  
December 9, 2011, 5:24am
erica Callam and Mia Moody: Facebook
We have a women and men cah board if u would like 2 join look me up on Facebook Erica Callam!!!
4  •  November 27, 2011, 4:16am
JMoore: Pelvic reconstruction
Hi all,   Does anyone a Doctor who will perform pelvic reconstruction in the Northern Virginia area? I am in my mid 30’s and I have SWCAH. I would like to get a consultation. Thank you,
October 11, 2011, 7:32am
Must lose weight: HCG Diet and CAH
Anyone try the HCG diet with CAH?  Is it possible?
1  •  September 20, 2011, 7:13am
reader: i recommend a novel
Hi, I recently read the Pulizer-Prize winning novel "Middlezex" by Jeffrey Eugenides and I highly recommend it. It is the story of a person born with 5-alpha-reductase deficiency and the family story of biological inheritence and cultural heritage...
1  •  September 5, 2011, 12:33pm
Laura: curious
Ok so this might be too controversial and not meant to offend anyone but i have always been curious to see what other CAH girls look like down there with or without surgery. I am sure i cannot be the only one??? i so if anyone is interested please email me bunnykinn@gmail...
3  •  August 29, 2011, 12:21pm
Chele: Problems in the bedroom
I’m a 27-year-old with SWCAH and ever since I could remember I’ve had difficulties in the bedroom. I believe it’s psychological because I can’t seem to get out of my head while being intimate with my partner. I know this is a touchy subject but has any other woman had any problems in that area? As far as orgasms, I mean? I honestly don’t know what to do and I don’t imagine that my insurance would pay for a ’sex’ therapist...
5  •  August 20, 2011, 12:17pm
anna: has anyone tried the new slow release hydrocortisone called plenadren???
Hello, I have been doing a bit of research on this what sounds like fantastic new treatment for CAH, it is released in the USA and EUR, it is a slow release hydrocortisone called plenadren (made by duocort) that mimics the bodies normal cortisone output...
2  •  August 19, 2011, 8:12am
Erica Callam and Mia Moody: facebook
This goes out 2 all the women and teenage girls with cah, swcah, and locah... We have a Facebook group just for US!!!! it is very private so the only way u can join is by adding me or Mia Moody 2 ur friends list... then we will join u 2 the group like i said it is very very private so what u post only u and the other girls on the page will c it...
August 11, 2011, 11:03am
Mia: Women with CAH
A friend and I recently started a group on Facebook called Women with CAH. The group is under secret status right now. We would like to invite all women affected with CAH to join. If you are interested please send either Erica Callum or Mia Moody a message through Facebook...
4  •  July 14, 2011, 11:48am
Janet: NEW Documentary featuring CAH
Oprah Winfrey Network (OWN) – check local channel listingsTuesday, 7/5 at 9pm & 12midnight Friday, 7/22 at 9p & 12midnightThe Truth of My Sex – A BBC and Discovery Documentaries ProductionThis compelling and sensitive documentary unlocks the stories of people born ’intersex’ - neither entirely male nor female - and asks whether our traditional understanding of gender is correct...
8  •  June 30, 2011, 7:35am
kate: Mental illness and CAH
Hi All, My brother who is 26 has CAH, as a result my parents knew to test me after i was concieved. i was positive, therefore they pumped my mother with cortisol and when i was born i no longer had it. I was the first case in Australia to go through this treatment, i was an experiment, and i am supposedly the first case to ’get over’ CAH...
6  •  May 16, 2011, 2:35am
Dora: can this be a solution for bad surgery?!?!?
I am also the result of a bad surgery, having a clitoris amputation instead of a clitoris reduction. I have found this article and i am reading ideas, blogs ans stories for 2 days now. What do you think? http://www.economist.com/node/9794899?story_id=9794899 Unfortunately no one is explaining the result of the surgeries, although i have read on different sites about women who apparently had the surgery.
6  •  March 16, 2011, 12:12pm
MLR: CAH female cant have orgasim
Hello, I would like to know if there are any CAH females out there that can actually have an orgasim.  I am unable to orgasim with sex or with masterbation. It is totally frustrating. I am 28 now and have never been able to climax no matter what I try...
13  •  March 2, 2011, 11:31am
ME: CAH mom having her fist baby. Terrified
Hello all, It has been a very long time since I have been on the forum. I have CAH an i am pregnant with my firt child. Of the four in my family 2 of us kids have CAH.My baby is due in 14 days. I am now begining to worry about the possiblitites of virilization...
13  •  March 1, 2011, 11:16am
SC: Anyone else with SWCAH Ever Been on Birth Control??
Hello, I am wondering if anyone with SWCAH or anyone else with CAH has ever been on birthcontrol? I am 30 year old who was previously on Ortho for irregular periods. I was having irregular periods, I believe due to changes in my medication. For the previous 15 years or so, I was regular every month almost to the date and was always in the 130-140lb range, I am 5’7"--may be too much information, but this why we have this site--to talk about these items...
February 12, 2011, 8:15am