Shayna: Family Daycare
Hi there, I was wondering if anyone had there children in daycare or home daycare. My 4 month old daughter has sw cah and as centrelink will not gove me carers allowence or a health care card i need to return to work to be able to survive. I am in the process of finding a good home day care but am a bit worried...
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4  •  March 21, 2013, 3:48am
A_Chidiac: Is There A Link between CAH and Mental Anxiety?... Please help
Hi, I’m a 30year old girl in Australia. I’ve had the Medical condition "Congenital Adrenal Hyperplasia" since birth which requires daily ongoing medication. I have also suffered at times in my life with Mental Anxiety (fears of things not true) and Panic Attacks...
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4  •  February 24, 2013, 5:38am
Danny Carlton (site admin): Board migration...
Within the next month or so we will be migrating the message boards over to the new social network platform at http://congenitaladrenalhyperplasia.raredisease.org/. If you go there (and register or log in) you’ll see that we already have several Sub-Communities...
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2  •  February 23, 2013, 11:13am
Simone: Carer’s allowance
Hi out there, Just wondering if anyone is receiving carer’s allowance for their SWCAH child. I have 2 of my 5 kids with SWCAH, a girl first and then a boy so with both needing meds, bloods and everything else that goes with CAh I thought I would apply for carer’s allowance but was knocked back...
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2  •  January 18, 2013, 3:48am
Andi: Testing
My husbands family has a history of cah, not sure if he is a carrier. recently i had surgery for endometreosis and the doc did blood work prior. My 17hydroxprogesterone came back as 310. I was in my leuteal phase..about 1 1/2 week before period. I do have slight hair growth, but I have dark hair and always assumed that was normal...
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January 5, 2013, 11:53am
PK: Dental Issue - Tooth Extraction for a CAH Child
My ( year daughter (SWCAH ) is due for a tooth extraction in the very near future. Would be great if there is anyone who could share such similar experiences especially with the dosing of hydrocortisone before and after the extraction ... Regards, PK
6  •  January 5, 2013, 4:37am
Tracey: Very sleepy 6 week old baby girl with SW CAH
Hello My daughter was diagnosed at birth with SW CAH and has been medicated with hydrocortisone, florinef and sodium chloride since day three of life.  She is being monitored by endo and paed, and her regular blood tests and development are fine (she was 2...
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6  •  November 16, 2012, 5:43am
Louise: Private Peadeatric Endo
I was wondering if anybody uses a private endo for their child in sydney rather than going to a public hospital. If so, who and do you find it a better experience. thanks
1  •  November 15, 2012, 9:16am
Michelle, President CAHSGA: Thank you
Thank you to everyone who attended the CAH Support Group of Australia Family Conference Day in Sydney, on Sunday 9th September at the Sydney Children’s Hospital. It was a fantastic day to learn and connect with other Australian CAH families. We had over 60 adults and 20 children with families travelling from SA, QLD and VIC for the event...
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4  •  September 16, 2012, 6:11am
YYF: CAH Specialist in Perth
Hi, Any CAH Specialist in Perth area? Which hospital/clinic and what is the specialist name?  
6  •  September 3, 2012, 12:25pm
CAH mum: Sugar Cravings
Do any CAH sufferers out there and/or parents have any advice regarding sugar cravings.  My SWCAH 10yr old daughter seems to be very preoccupied with thoughts of sugary junk food and sweet things, and has a huge aversion to all healthy things.  I know this sounds like a "normal child" seeking sweet treats, but we have always had a very clean and healthy diet, and I read somewhere CAH sufferers do tend to crave sweets more than  others - any thoughts/ideas??
August 25, 2012, 12:33pm
Lisa: Teething
Hi to everyone, I just wanted to ask about experiences with teething. Did anyone have to increase medication what there little one was teething? Our lil man seems a bit put of source with it. Thanks Lisa
2  •  August 8, 2012, 4:09am
Cassia Yap: Stem cell transplant
Hi, I’m from Malaysia. My eldest daughter (8 years old) was diagnosed with CAH since birth. My second daughter aged 3 is healthy and her cod blood was stored.  Has anyone of you checked with your endoctrinologist whether stem cell transplant can help CAH kid to live normal life without medication?  
2  •  August 1, 2012, 7:58am
Kimberly Reed: CAh/ behavoir/surgery
My daughter is four in she is full of knowledge she was diagnosed at 10 days old with the worae type of CAH BUT my concern is will the medications cause behavior problems and over eating. Plus my daughter is now asking to look like her sisters so im wondering should I go with her decision on the surgery...
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2  •  July 31, 2012, 5:14am
Lisa: 2 in 2 weeks
Hi All, I cannot believe it! My son was diagnosed two weeks before another baby boy was diagnosed. Both diagnosed with CAH, same hospital!! 1:15000 what are the chances of that?? Doesn’t that tell the medical profession that we need the NBST to include screening for CAH...
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2  •  July 30, 2012, 1:55am
Lisa: Testing
Hi Everyone, Just wondering........ We have had our sons genetic testing back and apparently he has 3 mutations????? Now me and hubby have been asked to be tested but not sure why??? Is this to work out who has what faulty gene etc??? And if so what purpose does this serve? And is the ’ three marker thing normal in SWCAH boys? Thanks, Lisa
2  •  July 26, 2012, 4:08am
LJ: Where to start... Help
My partner and i have started talking about starting a family, but i have swcah, and obviousley we want to know where we stand as far as, is she a carrier, will the baby be affected, who do we see etc, i have spoken to my endo who basically hasn’t had a cah patient previouse in her career and was a bit stumped as to where to start other then saying get genetic testing etc...
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2  •  July 12, 2012, 7:05am
Lisa: Going OK
I just thought I would let everyone who kindly replied to my first post, that we are going OK. it’s nice being able to relate to your posts and also know that it does get easier. My lil man is putting weight on at a steady rate, and doing everything he should be...
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1  •  June 27, 2012, 4:37am
Brenda: Salt Wasting CAH
Hi, my son is 3 yrs old and has a salt wasting CAH. we are moving to Melbourne next year 2013, and would like to know if anyone can recommend a good Endocrinologist. thanks so much    
2  •  June 20, 2012, 11:43am